Here it is already a week into May and I'm having difficulty beginning my monthly blog post! That is unusual, but our family is finding itself in a situation that seems indescribable. Words elude me!
When the cancer specialist's secretary called and asked us to confirm our decision to have palliative care instead of chemo for Hardy, I lost it. It felt like I had just confirmed a death sentence!
So I keep busy and it helps me to regain my equilibrium, to manage my fear and uncertainty and my grief at what is to come. There is so much to do! Husband Hardy (whose second name is hoarder--note the alliteration!) never throws anything away, so I have been in the garage filling the garbage and recycling bins to the top every week.
When I'm not cleaning out the garage, I'm in the backyard raking leaves, stuffing them into bags, composting. The other day there was a dead mouse just lying there in the middle of the yard. Normally I would have freaked, called Hardy and he would have taken care of it. Instead, I just stood and looked at it. It was so perfect. I wondered how it had died, as it had no marks on it. I marvelled at how beautiful it actually looked, before I scooped it into the garbage bin.
Writing is usually a healing process for me, but I had no words, except one: The word palliative, repeating itself in my head. My sister took me out for lunch and I told her about it. She looked at me and said, "We are all 'palliative.' I could die tomorrow, you could die today. None of us are exempt from that process, we just don't think about it."
I needed to hear those words to get my equilibrium back.
She also gifted me with a book that day. This book released something in me and helped me write about how I feel.





Vulnerable and holy are the perfect words for such a time. The etymology of palliative includes "cloak." May you both feel wrapped up in the warm cloak of family, friends, medical staff, God.
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DeleteThank you, Dora. So appreciate hearing from someone who has been there!
Hardy as holy hoarder, kind and humble . . . may you both experience a strong measure of love and peace as you continue to walk the palliative path.
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DeleteThank you Waldy. We feel the love and support.
Thank you for this, Elfrieda. Just last week a neighbour who I know to say a “friendly hi” to stopped me and asked if I had a minute. I said, “of course”, at which time he told me his wife had just been to the Dr and was told she needed a cancerous lump removed. I don’t know this couple well at all but have always liked them on a friendly basis. I can’t tell you how honoured I felt that he chose to tell me. He clearly needed to talk about it and the fact that I was there at the right time and that he felt comfortable to share his vulnerability with me was truly a “holy” experience for me. As was sharing lunch and conversation with you. We will do it again!❤️❤️
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DeleteIt’s a gift you have, Marge. You will experience more moments like this!
Thank you for allowing us a glimpse into this holy and vulnerable space! May love surround you both daily!
ReplyDeleteThani you, Kathy, that wish is being granted every day!
ReplyDeleteLove and Prayers in this journey, Elfrieda!
ReplyDeleteMuch appreciated, thank you!
ReplyDeleteyou are indeed brave, facing the accumulations of your lives. Eric kept everything, kind friends helped me with that after he was gone, was therapeutic for me. Hugs to you and Hardy as you walk these next steps together
ReplyDeleteMay The Holy Spirit be with you on your journey Love ❤️Rosula
ReplyDeleteThank you, Rosula. That is a wonderful promise!
DeleteOh Elfrieda….your journey is not an easy one! Be brave and lean on the people who love and support you…they will be there❤️ I have a copy of the book you mention….it is a beautiful story about love, kindness and living courageously and I read it often just to remind myself it takes courage to “live” but love makes all the difference. Thanks for sharing.
ReplyDeleteRuth Jansen
Sister love is so great! Thanks, Ruth!
DeleteCharlie Mackesy's fable is a work of art and heart, which suggests a brave new world to which readers can aspire. You and I (and all the friends you have bravely shared with) know that we are all bound for an eternal city free of sickness and death. It's the separation that is so very painful. Holding you and Hardy with love and asking for God's comfort, Elfrieda. ((( )))
ReplyDeleteYou are right, Marian, it’s the thought of the separation that is the most difficult. But it will only be for a short while, that is a comforting reminder!
DeleteDear Elfrieda and Hartmut. We want to send our greetings and prayers to you 🙏 for this difficult and unique journey you have chosen. May you sense the peace only God can send as you face each day with renewed energy. With love and prayers, Alma and Peter.
ReplyDeleteThank you, dear friends. We are all on this journey, aren’t we?
DeleteYour words came so unexpectedly. Due to distance, we haven’t been part of the journey of health issues. Thank you for your honesty. I cannot imagine how it feels to be in your shoes. I do know you are not alone and have people who love you. May you feel God’s presence as you walk on Holy Ground! Hugs to both of you from both of us!
ReplyDeleteThank you. If you can identify yourself that would be helpful
ReplyDeleteGwen Narimalla
DeleteElfrieda and Hardy know that you are in our prayers. We pray for strength and peace 🙏
ReplyDeleteThank you!
DeleteDear Hardy and Elfrieda We have so appreciated your kindness and love through many years. We pray for peace for both of you and for much energy for you, Elfrieda. Love Ray and Katie
ReplyDeleteThank you, dear friends!
DeleteElfrieda and Hardy, God is there and also here, but more here with you at this time. Just next to you both, protecting you under His Psalm 91 feathers. Find refuge under His wings and His eternal love.
ReplyDeleteI remember reading this Psalm at my parents’ 60th anniversary! We celebrated our 55th in January of this year! God gave us 55 plus good years—we are thankful!
DeleteHelen Nickel
ReplyDeleteVivid memories came into my mind while reading your blog of a similar decision we had to make. I cry with you and like you wrote, how we react is important in our journey of illness and grief because of the finality of it. I thank you for sharing in such an honest way. May you experience the truth of God's promise "I will never leave you or forsake you".
Always, before I go to sleep, I pray the German, memorized prayers my mother taught me, and I receive great comfort from them. It’s like a mantle of peace comes over me! That was her gift to me!
DeleteDear Elfrieda, dear Hardy!
ReplyDeleteI am so happy I had luck had opportunity to be part of your life. Even though I was there for a „glimpse”. I am not a praying person, but am sending over all my warm thoughts. I am also sending joyful memories of of our trip into the past, we made few years ago. May you both have strength. I remain with deep respect and am sending a lot of cordial greetings,
your Kasia
We are the privileged to have had you as a tour guide! Thanks for this greeting!
ReplyDeleteMy heart goes out to you both. As James Finley says, "if we are absolutely grounded in the absolute love of God that protects us from nothing even as it sustains us in all things, then we can face all things with courage and tenderness and touch the hurting places and others and in ourselves with love."
ReplyDeleteGreat quote!
ReplyDeleteI have been waiting for the 'right' words to come to me before responding here. I've been re-reading my copy of the book you recieved from your sister. This part speaks to me. "Everyone is a bit scared, said the horse. But we are less scared together."
ReplyDeleteThinking of you and your family, cousin Elfrieda.
Love, Robbie
“But we are less scared together” really hits the spot! Thanks, Robbie.
ReplyDeleteYou may feel as if words elude you, Elfrieda, but what you have written here beautifully expresses this holy and vulnerable time. Yes, we are all palliative - there is no cure for being human, as Kate Bowler titled one of her books. But choosing palliative care does not mean an immediate end either. It too is a journey, and I pray for you and Hardy, that you may know God's grace every step of the way.
ReplyDeleteThank you, April, your prayers are much appreciated, especially since you have taken this same journey recently. It’s a hard road to travel!
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